Privacy Policy

Your personal data – what is it?

Personal data relates to a living individual who can be identified from that data.  Identification can be by the information alone or in conjunction with any other information in the data controller’s possession or likely to come into such possession. The processing of personal data is governed by the General Data Protection Regulation 2016/679 (the “GDPR”).

Who are we? 

Down’s Syndrome – Derby (Registered Charity 1098847) is the data controller.  This means its trustees decide how your personal data is processed and for what purposes.

How do we process your personal data?

Down’s Syndrome – Derby complies with its obligations under the GDPR by keeping personal data up to date; by storing and destroying it securely; by not collecting or retaining excessive amounts of data; by protecting personal data from loss, misuse, unauthorised access and disclosure and by ensuring that appropriate technical measures are in place to protect personal data.

We use your personal data for the following purposes:

–          To enable us to provide a voluntary service for the benefit of the public in the geographical area as specified in our constitution;

–          To administer membership records;

–          To fundraise and promote the interests of the charity;

–          To manage our employees and volunteers;

–          To inform individuals of news, events and activities;

–          To process gift aid applications;

What is the legal basis for processing your personal data?

We hold and process data under Article 9 of the GDPR –

–          We hold explicit consent of the data subject (e.g. ordinarily so that we can tell people about events, news, activities, etc.);

–          We are legally required to hold personal data (e.g. to manage and pay our employees, to process Gift Aid, etc.)

The wording to the GDPR including full details of the processing conditions contained in Article 6 and Article 9 can be found here –

Sharing your personal data

Your personal data will be treated as strictly confidential.  We will only share your data with third parties with your consent.

How long do we keep your personal data?

We keep your personal data for no longer than reasonably necessary.  If there is a legal requirement (e.g. employment, Gift Aid, etc.) we will retain data for as long as is necessary for us to comply with legislation.  If there is no legal requirement, we will delete personal data on termination of membership of Down’s Syndrome – Derby.

Your rights and your personal data

Unless subject to an exemption [under the GDPR], you have the following rights with respect to your personal data: –

–          The right to request a copy of your personal data which Down’s Syndrome – Derby holds about you;

–          The right to request that Down’s Syndrome – Derby corrects any personal data if it is found to be inaccurate or out of date;

–          The right to request your personal data is erased where it is no longer necessary for Down’s Syndrome – Derby to retain such data;

–          The right to withdraw your consent to the processing at any time

–          The right to request that the data controller provide the data subject with his/her personal data and where possible, to transmit that data directly to another data controller, (known as the right to data portability), (where applicable)

–          The right, where there is a dispute in relation to the accuracy or processing of your personal data, to request a restriction is placed on further processing;

–          The right to object to the processing of personal data, (where applicable)

–          The right to lodge a complaint with the Information Commissioners Office.

Further processing If we wish to use your personal data for a new purpose, not covered by this Data Protection Notice, then we will provide you with a new notice explaining this new use prior to commencing the processing and setting out the relevant purposes and processing conditions. Where and whenever necessary, we will seek your prior consent to the new processing.

Contact Details

To exercise all relevant rights, queries of complaints please in the first instance contact Down’s Syndrome – Derby via the ‘Contact Us’ page on our website, by e-mail at or by mail to 189 Church Street, Waingroves, Ripley, DE5 9TF

You can contact the Information Commissioners Office on 0303 123 1113 or via email or at the Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire. SK9 5AF.